Andy Mikulak
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<p>Max Mikulak was born on June 30, 2001. He was diagnosed with stage
IV, high-risk neuroblastoma in October 2004. He whizzed through
frontline treatment and by the following summer was effectively on the
road back to a “normal” life – albeit with almost total hearing loss, a
new immune system, and about 10lbs to gain back, all courtesy of Mr.
Chemo.</p>
Unfortunately, Max relapsed (as most high-risk NB patients do) in
November 2006. Max fought bravely, entering a clinical trial in Vermont
where he received nifurtimox in combination with other chemo agents.
This combination diminished the disease until there was just one tiny
spot still evident on his spine. But in February 2008 the beast came
roaring back and we could never control it again, despite everything we
tried. Max passed away on August 31, 2008 at 8:45pm in his mommy and
daddy’s bed.</td>
<td><img src="http://cdn.shopify.com/s/files/1/0044/7342/files/pixel.gif?1267589918" width="30"/></td>
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<img src="http://static.shopify.com/s/files/1/0044/7342/files/max.jpg?1266520721" alt=""/><br/>
Max, December 2007 photo courtesy Deb Schwedhelm www.debsphotography.com</td>
<td><img src="http://cdn.shopify.com/s/files/1/0044/7342/files/pixel.gif?1267589918" width="40"/></td>
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<p>Max's Ring of Fire supports the <a href="http://www.nmtrc.org">Neuroblastoma and Medulloblastoma Translational Research Consortium or <b>NMTRC</b></a>.</p>
Based in Vermont but with core sites in San Diego, St. Louis, and Houston,
this pediatric oncology research and translational medicine program's
mission is to provide children with more precise, predictive approaches
to treating advanced neuroblastoma and medulloblastoma.
<p><a href="http://www.nmtrc.org"><img src="http://cdn.shopify.com/s/files/1/0044/7342/files/find-out-more.png?1267589923"/></a>
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<br/>
Over the course of Max's treatment, there were several web sites which were created which together, tell the full story of his and his parent's battle against neuroblastoma.<br/>
<br/>
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<td style="background-color: rgb(255, 237, 196); vertical-align: top;"><a style="text-align: center;" href="http://www.maxmikulak.com"><img style="margin-left: 10px; margin-right: 10px; margin-top: 10px;" alt="Max Mikulak and Tony Hawk" src="http://cdn.shopify.com/s/files/1/0044/7342/files/maxscancer.jpg?1267589926"/></a><br/>
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Max's Cancer blog was started soon after Max was diagnosed in 2004. His parents started it as a way to communicate with those that wished to follow Max's treatment, and serves as a running (still to this day) diary of the family's continuing journey.<br/>
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<a href="http://www.maxmikulak.com">MaxMikulak.com</a><br/>
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<td style="background-color: rgb(255, 237, 196); vertical-align: top;"><a style="text-align: left;" href="http://www.mashedpotatoesforbreakfast.com/"><img style="margin-left: 10px; margin-right: 10px; margin-top: 10px;" alt="Chronicles Max Mikulak's fight for his life against relapsed neuroblastoma. " src="http://cdn.shopify.com/s/files/1/0044/7342/files/mashedpotatosforbreakfast.gif?1267664759"/></a><br/>
<br/>
Mashed Potatos for Breakfast was started when professional photographer <a href="http://portfolio.debsphotographs.com/">Deb Schwedhelm</a> asked if she could chronicle Max's fight. Our goal with this project is to raise awareness and ultimately drive action to make sure that Max and other children like him win their fight and live to see adulthood.<br/>
<br/>
<a href="http://www.mashedpotatoesforbreakfast.com">MashedPotatoesForBreakfast.com</a><br/>
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<td style="background-color: rgb(255, 237, 196); vertical-align: top;"><a style="text-align: left;" href="http://maxmikulak.blogspot.com"><img style="margin-left: 10px; margin-right: 10px; margin-top: 10px;" alt="Max's Battle - Max is a 6 year old battling relapsed neuroblastoma" src="http://cdn.shopify.com/s/files/1/0044/7342/files/maxsbattle.jpg?1267589928"/></a><br/>
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Max's Battle was our attempt to tell Max's friends what was going on with him. It highlights the fun as well as the not-so-fun parts of his life. We stopped posting in Fall 2007 for some reason (we were busy at the time supposedly) but it still serves as a good reminder of what he did and how much fun he had in the summer of 2007. <br/>
<br/>
<a href="http://maxmikulak.blogspot.com">maxmikulak.blogspot.com</a><br/>
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2010-02-18T15:53:57-08:00
about-max
3836602
2010-02-18T15:53:57-08:00
447342
About Max
2010-03-04T11:31:50-08:00
<table cellpadding="" cellspacing="0" width="100%">
<tbody>
<tr>
<td style="vertical-align: top; background-color: rgb(255, 255, 255);">
<p>Max Mikulak was born on June 30, 2001. He was diagnosed with stage
IV, high-risk neuroblastoma in October 2004. He whizzed through
frontline treatment and by the following summer was effectively on the
road back to a “normal” life – albeit with almost total hearing loss, a
new immune system, and about 10lbs to gain back, all courtesy of Mr.
Chemo.</p>
Unfortunately, Max relapsed (as most high-risk NB patients do) in
November 2006. Max fought bravely, entering a clinical trial in Vermont
where he received nifurtimox in combination with other chemo agents.
This combination diminished the disease until there was just one tiny
spot still evident on his spine. But in February 2008 the beast came
roaring back and we could never control it again, despite everything we
tried. Max passed away on August 31, 2008 at 8:45pm in his mommy and
daddy’s bed.</td>
<td><img src="http://cdn.shopify.com/s/files/1/0044/7342/files/pixel.gif?1267589918" width="30"/></td>
<td style="vertical-align: top; background-color: rgb(255, 255, 255);">
<img src="http://static.shopify.com/s/files/1/0044/7342/files/max.jpg?1266520721" alt=""/><br/>
Max, December 2007 photo courtesy Deb Schwedhelm www.debsphotography.com</td>
<td><img src="http://cdn.shopify.com/s/files/1/0044/7342/files/pixel.gif?1267589918" width="40"/></td>
<td style="background-color: rgb(255, 255, 255); text-align: center; vertical-align: top;">
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<td style="text-align: left; background-color: rgb(255, 255, 255);"><span id="goog_1267728571009"></span><span id="goog_1267728571010"></span><img alt="" src="http://cdn.shopify.com/s/files/1/0044/7342/files/nmtrc.gif?1267664757"/><br/>
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<p>Max's Ring of Fire supports the <a href="http://www.nmtrc.org">Neuroblastoma and Medulloblastoma Translational Research Consortium or <b>NMTRC</b></a>.</p>
Based in Vermont but with core sites in San Diego, St. Louis, and Houston,
this pediatric oncology research and translational medicine program's
mission is to provide children with more precise, predictive approaches
to treating advanced neuroblastoma and medulloblastoma.
<p><a href="http://www.nmtrc.org"><img src="http://cdn.shopify.com/s/files/1/0044/7342/files/find-out-more.png?1267589923"/></a>
</p>
</td>
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<td style="vertical-align: top; background-color: rgb(255, 255, 255);"><img src="http://cdn.shopify.com/s/files/1/0044/7342/files/max-on-the-web.gif?1267589925"/><br/>
<br/>
Over the course of Max's treatment, there were several web sites which were created which together, tell the full story of his and his parent's battle against neuroblastoma.<br/>
<br/>
<table cellpadding="20" width="100%">
<tbody>
<tr>
<td style="background-color: rgb(255, 237, 196); vertical-align: top;"><a style="text-align: center;" href="http://www.maxmikulak.com"><img style="margin-left: 10px; margin-right: 10px; margin-top: 10px;" alt="Max Mikulak and Tony Hawk" src="http://cdn.shopify.com/s/files/1/0044/7342/files/maxscancer.jpg?1267589926"/></a><br/>
<br/>
Max's Cancer blog was started soon after Max was diagnosed in 2004. His parents started it as a way to communicate with those that wished to follow Max's treatment, and serves as a running (still to this day) diary of the family's continuing journey.<br/>
<br/>
<a href="http://www.maxmikulak.com">MaxMikulak.com</a><br/>
</td>
</tr>
</tbody>
</table>
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<table cellpadding="20" width="100%">
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<td style="background-color: rgb(255, 237, 196); vertical-align: top;"><a style="text-align: left;" href="http://www.mashedpotatoesforbreakfast.com/"><img style="margin-left: 10px; margin-right: 10px; margin-top: 10px;" alt="Chronicles Max Mikulak's fight for his life against relapsed neuroblastoma. " src="http://cdn.shopify.com/s/files/1/0044/7342/files/mashedpotatosforbreakfast.gif?1267664759"/></a><br/>
<br/>
Mashed Potatos for Breakfast was started when professional photographer <a href="http://portfolio.debsphotographs.com/">Deb Schwedhelm</a> asked if she could chronicle Max's fight. Our goal with this project is to raise awareness and ultimately drive action to make sure that Max and other children like him win their fight and live to see adulthood.<br/>
<br/>
<a href="http://www.mashedpotatoesforbreakfast.com">MashedPotatoesForBreakfast.com</a><br/>
</td>
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</tbody>
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<td style="background-color: rgb(255, 237, 196); vertical-align: top;"><a style="text-align: left;" href="http://maxmikulak.blogspot.com"><img style="margin-left: 10px; margin-right: 10px; margin-top: 10px;" alt="Max's Battle - Max is a 6 year old battling relapsed neuroblastoma" src="http://cdn.shopify.com/s/files/1/0044/7342/files/maxsbattle.jpg?1267589928"/></a><br/>
<br/>
Max's Battle was our attempt to tell Max's friends what was going on with him. It highlights the fun as well as the not-so-fun parts of his life. We stopped posting in Fall 2007 for some reason (we were busy at the time supposedly) but it still serves as a good reminder of what he did and how much fun he had in the summer of 2007. <br/>
<br/>
<a href="http://maxmikulak.blogspot.com">maxmikulak.blogspot.com</a><br/>
</td>
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